Checking out the Lord & Taylor window
NY Public Library
Ice skating at Bryant Park
We all really enjoyed the Christmas Spectacular at Radio City Music Hall. Our seats weren’t exactly ADA-approved, and Ben’s JORDY didn’t work with their lighting, but he enjoyed it anyway. There was a mix of the Nutcracker, the Biblical Christmas story (with a live Nativity), a video game, and 3D graphics. We had to basically sprint 17 city blocks to get there in time (in the rain, with a million umbrellas crowding the sidewalks) because we couldn’t catch a cab, but that just added to the adventure. 
We didn’t even bother trying to get a cab after the show. We oohed and aahed over the Empire State Building’s glow in the clouds as we passed.
Rockefeller Center tree
Of course, all the fun was secondary to the real purpose for our visit: Ben’s steroid treatment. He was in the hospital for four days. When they did the treatment in January, he got doses every 6 hours, around the clock, for three days. This time, he got a dose once a day for three days. He had a few side effects this time that we didn’t notice last time, but they’ve all tapered off and he is doing very, very well. I know he may never be whole here on earth, but he is so close right now. The steroids don’t help his vision (nothing will), and he’s seemed to struggle more with it in the past couple of weeks, but everything else is much improved. We are so very grateful.
They also did an extended EEG while he was there. Four years seizure-free!
Done!
what a great update and pictures, so thankful this is working …… looked like a successful trip, loved Emma’s doll!